{"id":1508,"date":"2022-06-28T10:00:00","date_gmt":"2022-06-28T13:00:00","guid":{"rendered":"http:\/\/treslineasnoticias.com.ar\/?p=1508"},"modified":"2022-07-04T20:09:21","modified_gmt":"2022-07-04T23:09:21","slug":"el-dia-del-sindrome-de-dravet-fue-declarado-de-interes-municipal","status":"publish","type":"post","link":"https:\/\/treslineasnoticias.com.ar\/?p=1508","title":{"rendered":"EL D\u00cdA DEL S\u00cdNDROME DE DRAVET FUE DECLARADO DE INTER\u00c9S MUNICIPAL"},"content":{"rendered":"\n<p><strong>El Honorable Concejo Deliberante de Berazategui (HCD) declar\u00f3 de Inter\u00e9s Municipal el 23 de junio de cada a\u00f1o como D\u00eda del S\u00edndrome de Dravet, a trav\u00e9s de la Ordenanza N\u00ba 6200. A partir de las 00.00 de esa fecha, se iluminaron de violeta diferentes puntos de la ciudad, con el objetivo de visibilizar la enfermedad.<\/strong><\/p>\n\n\n\n<p>La concejal berazateguense Mabel Dias afirm\u00f3 con emoci\u00f3n: \u201cEsta iniciativa comenz\u00f3 en diciembre de 2021 cuando conoc\u00ed a Estela Castro, quien me vino a ver muy acongojada para comentar su idea de declarar el 23 de junio como D\u00eda del S\u00edndrome de Dravet. Desde el Bloque Justicialista le aseguramos nuestro apoyo y acompa\u00f1amiento para que eso sea posible, por intermedio de nuestro intendente Juan Jos\u00e9 Mussi y la Secretar\u00eda de Salud P\u00fablica e Higiene municipal\u201d.<\/p>\n\n\n\n<p>Por su parte, Estela Castro, integrante de la Organizaci\u00f3n Actitud Dravet, expres\u00f3: \u201cHay agrupaciones de familias que nos unimos para ayudarnos mutuamente y visibilizar esta enfermedad. Que el Municipio nos ayude con la Ordenanza nos da impulso para concientizar y capacitar a la poblaci\u00f3n, y para que efectivamente se apruebe una ley nacional para que nuestros hijos tengan una mejor calidad de vida\u201d.<\/p>\n\n\n\n<p>El s\u00edndrome de Dravet es una forma rara y catastr\u00f3fica de epilepsia intratable que comienza en el primer a\u00f1o de vida. Los problemas comunes asociados incluyen convulsiones prolongadas y frecuentes, retraso en el desarrollo, afecciones ortop\u00e9dicas, problemas odontol\u00f3gicos, de lenguaje y habla; trastornos en el comportamiento y espectro autista, problemas de crecimiento y nutrici\u00f3n e infecciones cr\u00f3nicas, entre otros.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>El Honorable Concejo Deliberante de Berazategui (HCD) declar\u00f3 de Inter\u00e9s Municipal el 23 de junio de cada a\u00f1o como D\u00eda del S\u00edndrome de Dravet, a trav\u00e9s de la Ordenanza N\u00ba 6200. A partir de las 00.00 de esa fecha, se iluminaron de violeta diferentes puntos de la ciudad, con el objetivo de visibilizar la enfermedad. [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":1509,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[4],"tags":[],"class_list":["post-1508","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-berazategui"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.5 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>EL D\u00cdA DEL S\u00cdNDROME DE DRAVET FUE DECLARADO DE INTER\u00c9S MUNICIPAL - Tres Lineas Noticias<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/treslineasnoticias.com.ar\/?p=1508\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"EL D\u00cdA DEL S\u00cdNDROME DE DRAVET FUE DECLARADO DE INTER\u00c9S MUNICIPAL - Tres Lineas Noticias\" \/>\n<meta property=\"og:description\" content=\"El Honorable Concejo Deliberante de Berazategui (HCD) declar\u00f3 de Inter\u00e9s Municipal el 23 de junio de cada a\u00f1o como D\u00eda del S\u00edndrome de Dravet, a trav\u00e9s de la Ordenanza N\u00ba 6200. A partir de las 00.00 de esa fecha, se iluminaron de violeta diferentes puntos de la ciudad, con el objetivo de visibilizar la enfermedad. 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