{"id":9217,"date":"2024-09-17T19:18:47","date_gmt":"2024-09-17T22:18:47","guid":{"rendered":"https:\/\/treslineasnoticias.com.ar\/?p=9217"},"modified":"2024-09-17T19:18:48","modified_gmt":"2024-09-17T22:18:48","slug":"se-desarrollara-en-quilmes-el-primer-congreso-federal-de-enfermedades-poco-frecuentes","status":"publish","type":"post","link":"https:\/\/treslineasnoticias.com.ar\/?p=9217","title":{"rendered":"SE DESARROLLAR\u00c1 EN QUILMES EL PRIMER CONGRESO FEDERAL DE ENFERMEDADES POCO FRECUENTES"},"content":{"rendered":"\n<p>El Municipio de Quilmes informa que el viernes 4 de octubre se llevar\u00e1 adelante en la Casa de las Culturas, ubicada en Rivadavia 383, una de las jornadas del 1\u00ba Congreso Federal de Enfermedades Poco Frecuentes (EPOF), dirigido a profesionales de la salud de las distintas \u00e1reas, promotores, estudiantes, referentes de organizaciones y \u00e1reas municipales.<\/p>\n\n\n\n<p>En esta jornada, llamada Simposio EPOF, se tratar\u00e1n distintos temas desde su inicio, a las 9, comenzando por \u201cDiagn\u00f3stico de precisi\u00f3n, epidemiolog\u00eda y registros\u201d, con la participaci\u00f3n de los doctores Rub\u00e9n Sosa, pediatra; Javier Santos, investigador de CONICET LB3 ALAPA, y Carolina Paternoste (pacientes sin diagn\u00f3stico, exoma cl\u00ednico dirigido).<\/p>\n\n\n\n<p>Luego continuar\u00e1 con una segunda mesa llamada \u201cHacia una gesti\u00f3n municipal con agenda en EPOF\u201d, con la presencia de Adriana de Figueredo, licenciada en trabajo social y directora asociada Hospital Iriarte; Nicol\u00e1s Sticco, m\u00e9dico pediatra en cuidados integrales; Sabrina L\u00f3pez, m\u00e9dica genetista del Hospital de Cl\u00ednicas, y Carolina Begue, secretaria de Salud del Municipio de Quilmes.<br><br>La tercera mesa, denominada \u201cEquidad, Educaci\u00f3n y Discapacidad\u201d, tendr\u00e1 la participaci\u00f3n de: Alexis Descouviere, del grupo de pap\u00e1s y mam\u00e1s de glioma difuso; Alejandra Tornero, docente fundadora de Enfermedades Lisosomales, y Romina Olmos, directora general de Discapacidad local. En tanto que el cierre de la jornada estar\u00e1 a cargo de la concejala Bel\u00e9n Mar\u00f3n, de la Mesa EPOF Quilmes.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>El Municipio de Quilmes informa que el viernes 4 de octubre se llevar\u00e1 adelante en la Casa de las Culturas, ubicada en Rivadavia 383, una de las jornadas del 1\u00ba Congreso Federal de Enfermedades Poco Frecuentes (EPOF), dirigido a profesionales de la salud de las distintas \u00e1reas, promotores, estudiantes, referentes de organizaciones y \u00e1reas municipales. [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":9218,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[5],"tags":[],"class_list":["post-9217","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-quilmes"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.5 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>SE DESARROLLAR\u00c1 EN QUILMES EL PRIMER CONGRESO FEDERAL DE ENFERMEDADES POCO FRECUENTES - Tres Lineas Noticias<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/treslineasnoticias.com.ar\/?p=9217\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"SE DESARROLLAR\u00c1 EN QUILMES EL PRIMER CONGRESO FEDERAL DE ENFERMEDADES POCO FRECUENTES - Tres Lineas Noticias\" \/>\n<meta property=\"og:description\" content=\"El Municipio de Quilmes informa que el viernes 4 de octubre se llevar\u00e1 adelante en la Casa de las Culturas, ubicada en Rivadavia 383, una de las jornadas del 1\u00ba Congreso Federal de Enfermedades Poco Frecuentes (EPOF), dirigido a profesionales de la salud de las distintas \u00e1reas, promotores, estudiantes, referentes de organizaciones y \u00e1reas municipales. 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